brettscancerjourney

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  • Treatment Continues Weeks 6-7
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Twas the night before treatment starts

 It is Sunday Night 01 March 2009 and I am under my bed covers with a flashlight writing in my diary – I’m scared  ….. well not really but you get the picture.

 I am apprehensive though…………..what will the next twenty four hours bring - I know this was my last day of being "chemical free" for the next seven to fourteen weeks.  I am starting chemo tomorrow at around noon, I still don’t know if I will be admitted overnight or if I will have to have the treatment over two days.  I start radiation therapy on Wednesday at around 1915 (I had a phone call from the hospital on Friday night at about 1845 explaining they were still planning my radiation treatment and had to put off starting it for 48 hours).

 All these thoughts are going through my head, how soon will I get sick, will I be able to work, for how long, ………. Even though I have been told a million times what to expect I have forgotten it all as the hour approaches.  Oh well can’t back out now – see you at the bottom of the slide.  Wheeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

 

Week 1 – 02 to 08 March 2009

 02 March 2009 – I attended my appointment with the Chemotherapy Oncology Department and mentioned that I was pushed back to Wednesday by the Radiation department.  To cut a long story short I now don’t start any treatment until Wednesday.

 

I think I indicated earlier that one of the side effects of the chemo is a temporary effect on the bone marrow . The bone marrow makes blood cells and a drop in its function can cause issues including having to postpone treatments. The effect is monitored by regular blood tests (weekly before my reviews). I will have a further blood test prior to my next chemo in three weeks time and these results will dictate any changes to the treatment.  

Listed below are the aspects of most interest, together with my readings from my blood test on 23 Feb 09:

  •     Haemoglobin                                   154
  •     White Cell Count                              5.50
  •     Platelet Count Blood                          229
  •     Neutrophils Absolute                         3.16
  •     Creatinine Plasma V1                          77

03 March 2009 - Nothing today execpt waiting for everything to start tomorrow.

04 March 2009 - DAY ONE OF TREATMENT

Start of Chemotherapy

Today is my first Chemotherapy treatment. Chemotherapy refers to the use of special drugs to treat cancer. It comes from the combing of the words chemical and therapy Chemotherapy uses anticancer (cytotoxic) drugs to kill cancer cells. My prescribed drug, as indicated earlier, is Cisplatin.

 I was to be at the hospital by 0730 for an 0800 start, but being ex-military you are always suppose to be anywhere 10 minutes before you are supposed to start so at 0715 I checked into reception and took my seat.  To cut along story short I was still sitting around waiting at 1000 when I was summoned to see yet another Resident to go over my file.  When I explained I had been through all this on Monday and my treatment was put off due to the delay in radiation the Resident apologised and I went back outside to sit and wait.  As a side note there were no beds available in the ward for an overnight stay so I was to recieve my treament over two days at "fractional doses"

After about 10 minutes I was called to the treatment area.

 
WE had a very helpful and professional nurse who started H & I off with an explanation of what was going to happen.  He then showed us a DVD of what to expect and also went through the likely side effects. These were pretty much as I presented them earlier in my diary. He also gave us a further collection of reading material which was very helpful, the package also include two books I had received at the Head and Neck Clinic - Nutrition for People Living with Cancer and Understanding Chemotherapy both produce by and available from the Cancer Council of QLD.

 

I was placed in Treatment Bay 1 which contained three beds and four remote controlled chairs with leg rest and adjustable back and head rest. All the chairs and beds were occupied and I was told this was pretty standard,  infact the Hospital was looking to expand it's facilities to meet the demand.  From my recon there seemed to be about 6 treament bays all set out in a similar way.

I was told the procedure would take about 4.5 to 5 hours (no wonder they make you comfortable).

  •     The procedure started with an anti nausea tablet Emend 125mg, this is given an hour before the chemo drug. I was also given two of these tablets (80mg) to take at home over the next two days (one before my treatment tomorrow)
  •      I then had a cannula fitted (small tube into the vein) and connected to 1000ml of Normal Saline (given over 60 minutes) to ensure my kidneys were flushed.  I needed to through a post hydrantion procedure (have a pee) a few times during this hour so luckily the toilets were close at hand.  In fact a number of the patients were in post hydration so there was an endless stream (pun intended) passing by.  As indicated earlier Cisplatin can cause damage to the kidneys so flushing of the kidneys is important not only as part of the procedure but also over the following couple of days
  •     Dexamethasun 6ml (slow IV) was then added to the line as a further anti nausea measure
  •      Granisetron 3mg was the added to the line as a further anti nausea measure.
  •     Cisplatin 105mg + Potasium 1000ml over 60 minutes was then administered via the cannula line
  •     Once the Cisplatin has been administered a further 1000ml of Normal Saline was administered over 60 minutes to continue to flush the kidneys

The procedure took just on 4 hours. I felt fine throughout. As I stated above luckily my chair was close to the unisex toilets because there was a lot of fluid to be passed. There was quite a procession of men and women (of all ages) heading into the toilets wheeling their trolley with the bags of medication attached. Snacks were provided (a nice touch) sandwiches, juice coffee and fruit,  about all I felt like really. I spent the time reading magazines, my university text books and watching a little TV.  H is always there with me going through it all by my side. She is great company and I love her to bits.

Driving home after the chemo I was feeling fine although a little light headed.  I had my first Radiation to look forward to tonight.

 

Start of Radiation

H & I arrived at 1855 for a 1910 appointment and received my appoint schedule for the next day (1615).  We sat down in the waiting room and around us were half completed jigsaws, a copious amount of magazines and a TV.  At the appointed time one of the staff from the treatment area came to collect me.  The process went like this:

  •     A brief explanation of the process was given by a member of staff
  •     I was then taken into the treatment room and some more measurements were taken using an x-ray device
  •     The radiation therapy (using a Linear Accelerator) was then given. I did not feel anything. The radio therapy treatment device revolved around me as a lay perfectly still locked in my mask. The device whirrs and a couple of light come on in the room when it is active. The ceiling is painted dark grey with lights embedded that twinkle like stars. A nice touch.
  •     Then it was over, about twenty five minutes altogether, but they explained that today was a bit longer than usual because of the x-rays so as to double and triple check.

Day one was over and I was feeling none the worse for wear, lets see how day two unfolds.

 

05 March 2009 - DAYTWO OF TREATMENT

There was much the same today as there was yesterday without all the waiting around.  I had the same drug cocktail for chemo and straight after slipped in for radiation (ahead of my sceheduled time of 1615).  I was home by about 1530. 

The only noticable change was that the Cisplatin was given over 2 hours as opposed to yesterday's 1 hour and I was (and still am) suffereing from a little nausea, heartburn and hiccups.

I plan to go to work tomorrow so I will see how I feel then.

06 March 2009

I went to work today, feeling fine in the morning but at about lunchtime the fatigue set in and I went home for a LLD (little lie down).  I slept for about 4 hours then went to pick M&D up from hockey training.  I then spent the next hour watching TV and having something to eat before the hospital called and asked if i could come in early for my radiation (2000 instead of 2100) so I packed up and headed in for my third radiation treatment.

 

07 and 08 March 2009 (The weekend)

Did it a bit tough Saturday. Feeling quite tired. Very lethargic. I stayed in bed until about lunchtime (because I could) then got up to see what had happened in the world.  The hiccups and heartburn are still ever present so I am assuming it is to do with the drugs.  Sunday was a better day, spent most of it at hockey trials, hockey development day and the last game of the indoor hockey season for the team.  Overall I am now starting to come good, although the hiccups and heartburn are still haunting me.  When I see the radiation oncology doctors tomorrow I will see if this is normal.

I suppose this is technically week one down eventhough it was only three days.  I now look forward to the next six or so weeks (yeah right)

  

Week 2 – 09 to 15 March 2009

 09 March 2009 

I have two treatment reviews scheduled for today, one with radiation and one with chemo plus an early radiation treatment, so I don't have to be out to late on a school night.

My first treatment review was to be with chemo but they lost my file so I ended up sitting around for an hour waiting for my review.  When I got in I asked the doctor about my hiccups and heartburn and the obvious answer (as I suspected) was being they were caused by one of the anti-nausea tablets probably the Dexamethasone I had as part of my canula treatment.  The doctor also said, although rare, that one of the more uncommon side effects of Cisplatin is the hiccups.  As for the heartburn I have been prescribed Omeprazole (20mg) which I am to take each night before bed.

Overall I was on track with blood results being normal and no real side efects from treatment yet

 

After the chemo review it was downstairs to Level three for my radiation review.  I once again sat around for an hour waiting for my oncologist.  Before I got into see them I was called and told I could have my radiation now if I was ready as I was there and I was silly for me to waste the time BUT low and behold I sat around for another 30 minutes (the Linear Accelerator was having maintainence) before being ushered in to have radiation.  When I came out I was told I needed to see the nurses station as they had a few points to go over with me about skin care, diet, oral hygiene etc for my radiation burns.  Whilst talking to the nurses I was told the doctor was ready and (90 minutes late) I had my radiation treatment review.

 

10 March 2009

Another day - another radiation treatment. 

I was told that I was also scheduled for a Head and Neck seminar on the morrow.  What this is about is that there is a two hour lecture each week to discuss diet, speech, ocupational therapy, social worker activities etc - all in a group atmosphere.  I will have my radiation straight afterwards tomorrow so once again there is disruption to work activities.

 

11 March 2009

First up today was the Head and Neck seminar.  There were four of us in attendance and there was some pretty useful information passed on.  Most I had already heard either from my specialists or at the H&N clinic when my treatment was being planned but as I have previously said you can never have to much information.  An interesting statistic came out and that is the hospital does around 200-250 radiations treatments a day - that's a lot of cancer out there.  

After the seminar I went and had my radiation treatment.  The radiation must be taking its required effects as I have now noticed that food is becoming "metallic"  as my tastebuds die (this is a temporary side effect until after treatment ceases).  Also at night my mouth is becoming very dry (I understand this is now a "forever" side effect as the saliva glands are permanently damaged) so I will have to start on the mouth lubricant gels. 

As a side note - my whole daily routine has been increased by about an hour as I put on lotions and creams, go throught the oral hygiene ritual each morning and night (esuring I don't get the relevant bits out of order).

12 13 14 and 15 March 2009

Radiation has continued Thursday and Friday with no real side effects being shown.  I have although caught a cold on Friday (13th) and it has persisted  over the week end.  I was up most of Friday night Saturday morning coughing and blowing my nose.  My temperature has not deviated in any way so I have been lucky in that my body is fighting the infection.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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